Parent to Parent of Georgia is a statewide organization that assists families with children with any type of special need / disability. We have representatives across the state, with an office in Lowndes County serving the southern regions.
Parent to Parent of Georgia offers a variety of services to Georgia families impacted by disabilities or special healthcare needs, providing support, information, education, and leadership development for Georgians with disabilities or special health care needs, ages birth to 26, and their families. Families are never charged for our services. https://www.p2pga.org for additional information.
Upon learning you’ve been diagnosed with a neuromuscular disease, understanding where to begin can be challenging. The resources below can help you navigate your journey. Start here: https://www.mda.org/care/resource-list
If you’re looking for one-on-one assistance, the National MDA Resource Center is available Monday through Friday 9 am to 5 pm CST by phone at 1-833-ASK-MDA1 (1-833-275-6321) or email at ResourceCenter@mdausa.org.
Neuromuscular Disease Foundation Certified Patient Advocates have created a comprehensive list of some suggested daily living aids/adaptive devices for GNEM patients. This document lists functional and practical aides that people across the GNEM community have found helpful for various areas of daily living including dressing, eating, hygiene needs, and miscellaneous. As more people in the community come across helpful items, the resources document will continue to grow. To view this compiled list: Click here to download a list of assistive devices
Additional assistive devices and supportive services:
A global group of GNE Myopathy patients, their family, and friends helping to raise awareness of GNEM worldwide.
Christopher and Dana Reeve Foundation explains various assistive technologies with a section on adapting a car for disabled patients.
Global Genes whose mission is to eliminate the challenges of persons with rare diseases.
The Jain Foundation has developed ALDA (an automated diagnostic assistant) a free online tool to help guide physicians toward the most probable diagnosis.
This is an amazingly complete, 31 page document with contact information, abuse, advocacy, behavior, crisis, disability, developmental disability, housing, learning, mental health, neurology, Parent 2 Parent,rehabs,residential, respite, state agencies, transitional, veterans, vision…sp_ed_resources_by_topics.doc
Bainbridge Advocacy Individual Network, Inc.
316 West Shotwell Street
BAIN is a Center for Independent Living (CIL) dedicated to promoting independence and improving the quality of life for individuals with disabilities in South Georgia. BAIN, Inc is a non-profit, non-residential center serving eleven counties throughout southwest Georgia. BAIN offers information and workshops on topics such as finances, money management skills, home modifications, personal attendant management and how to access community support systems. BAIN will assist you on an individual, personalized basis. BAIN also offers: Transportation Voucher Program, Computer Recycling, Low Cost Eyeglass Program, Loan Closet, Ramps/Assistive Technology, Resource Library, Computer with Internet Access, Assistive Devices, Alternative formats: Large Print, Audio Cassette and Braille